{"id":5252,"date":"2025-05-20T17:40:01","date_gmt":"2025-05-20T17:40:01","guid":{"rendered":"https:\/\/alsoweb.org\/?p=5252"},"modified":"2025-05-20T17:42:59","modified_gmt":"2025-05-20T17:42:59","slug":"breaking-stigma-addressing-mental-health-needs-in-disability-communities","status":"publish","type":"post","link":"https:\/\/alsoweb.org\/nonprofit-blog\/breaking-stigma-addressing-mental-health-needs-in-disability-communities\/","title":{"rendered":"Breaking Stigma: Addressing Mental Health Needs in Disability Communities"},"content":{"rendered":"<h1>Breaking Stigma: Addressing Mental Health Needs in Disability Communities<\/h1>\n<p>Imagine that you&#8217;re living with a disability. Maybe you have cerebral palsy, or possibly you recently had a stroke that required you to use a cane or a walker. Well, you just happen to be a very conscientious and hard-working employee at a bank. You know your skill set. You know you&#8217;re good with numbers and figures. You&#8217;re trying to explain to a customer how their checking account may have become overdrawn, and why they need to pay an overdraft fee. The customer becomes increasingly frustrated and belligerent, which brings the manager over to see what&#8217;s going on.<\/p>\n<p>The customer then blurts out, &#8220;How can you <em>possibly<\/em> hire people <em>like this<\/em> who don&#8217;t know what they&#8217;re doing? Are you really that desperate for employees?!&#8221;<\/p>\n<p>Even though you were in the right, you go home from work that day angry, deflated, and frustrated. &#8220;What the heck do they mean, &#8230;&#8217;<em><strong>people like this?&#8217;\u00a0<\/strong><\/em>&#8221; Too many days like this one, and you become anxious.\u00a0Feelings of sadness and depression emerge.\u00a0Understandably, your mental health suffers.<\/p>\n<p><em>Scenarios like this one are all-too-common for people with intellectual and developmental disabilities (I\/DD). As professionals who support individuals living with I\/DD, we describe how mental health issues and other disabilities intersect to create a series of complex challenges that interfere with the everyday life needs that we all have regardless of ability: the need to be included in a community, feel productive, and take care of ourselves. We&#8217;ll also put forth a series of solutions to address the stigma of mental health and disability.\u00a0<\/em><\/p>\n<h2>Stigma of Mental Health Conditions for People with Disabilities<\/h2>\n<div class=\"wp-block-image\"><img decoding=\"async\" class=\"wpa-warning wpa-image-missing-alt aligncenter wp-image-3892 size-large lazyload\" data-src=\"https:\/\/alsoweb.org\/wp-content\/uploads\/2022\/11\/Social-Security-1024x731.webp\" alt=\"A direct support professional from ALSO sits on a sofa with a female adult client with developmental disabilities, helping her to work on a digital tablet. \" width=\"1024\" height=\"731\" data-warning=\"Missing alt text\" data-srcset=\"https:\/\/alsoweb.org\/wp-content\/uploads\/2022\/11\/Social-Security-1024x731.webp 1024w, https:\/\/alsoweb.org\/wp-content\/uploads\/2022\/11\/Social-Security-300x214.webp 300w, https:\/\/alsoweb.org\/wp-content\/uploads\/2022\/11\/Social-Security-768x548.webp 768w, https:\/\/alsoweb.org\/wp-content\/uploads\/2022\/11\/Social-Security-500x357.webp 500w, https:\/\/alsoweb.org\/wp-content\/uploads\/2022\/11\/Social-Security.webp 1500w\" data-sizes=\"(max-width: 1024px) 100vw, 1024px\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" style=\"--smush-placeholder-width: 1024px; --smush-placeholder-aspect-ratio: 1024\/731;\" \/><\/div>\n<p>&nbsp;<\/p>\n<p>People with disabilities make up the <a href=\"https:\/\/missingperspectives.com\/posts\/intersectionality-disability\/\">largest minority population on Earth<\/a>. Briar Harte knows all-too-well how discrimination and bias can affect daily life. After acquiring a disability at the age of 27, she was treated differently right off the bat. After running a global sourcing program, she suddenly experienced microaggressions and soft bigotry, with people making decisions for her and about her, like she was somehow less of a person. Briar was derided for not using makeup and wearing flat shoes, &#8216;looking <em>so unprofessional.<\/em>&#8216; She was stigmatized for having a disability.<\/p>\n<h3>The Intersection Between Mental Health and Disability<\/h3>\n<p><a href=\"https:\/\/www.h2hhc.com\/blog\/understanding-the-link-between-intellectual-disabilities-and-mental-health#:~:text=Research%20shows%20a%20robust%20link%20between%20mental%20health,other%20psychiatric%20disorders%20compared%20to%20the%20general%20population.\">Mental health<\/a> can be described as a person&#8217;s social, emotional, and psychological well-being; it changes over time, fluctuating from positive and happy to anxious or sad. Other mental conditions include depression, bipolar disorder, schizophrenia, and substance use disorder.<\/p>\n<p>According to the <a href=\"https:\/\/thinkequitable.com\/intersection-of-disability-and-mental-health\/\">National Center for Disability, Equity, and Intersectionality,<\/a> 17.4 million adults with disabilities experience frequent mental distress. So, what&#8217;s the connection between mental health problems and disability?<\/p>\n<p>Research has indicated that approximately <a href=\"https:\/\/www.h2hhc.com\/blog\/understanding-the-link-between-intellectual-disabilities-and-mental-health#:~:text=Research%20shows%20a%20robust%20link%20between%20mental%20health,other%20psychiatric%20disorders%20compared%20to%20the%20general%20population.\">30% to 40% of persons <\/a>with intellectual disabilities also have mental health problems. They are at higher risk of developing conditions such as mood and anxiety disorders, psychoses, and schizophrenia. It isn&#8217;t like just having two separate disorders. But instead, each condition has an effect on the other, compounding them to create a complex labyrinth of daily challenges that interfere with school, work, and independent living.<\/p>\n<p>Instances of stigmatization further amplify the problems. Bias, discrimination, and sometimes outright hostility cause people with combinations of disabilities and mental health diagnoses that severely interfere with emotional well-being.<\/p>\n<h3>Historical and Cultural Roots of Stigma<\/h3>\n<p>Over the millennia, there have been several <a href=\"https:\/\/dsq-sds.org\/index.php\/dsq\/article\/view\/3197\/3068\">misconceptions and misplaced stereotypes<\/a> related to mental health and disability. Admittedly, a few of them were positive. For example, in a region of Ghana, people with intellectual disabilities were believed to be reincarnated from a deity and therefore treated with kindness. Unfortunately, in most situations, those with developmental and mental health issues were treated very negatively.<\/p>\n<p>Early Greeks felt that all sickness meant inferiority, and that those with disabilities should be &#8216;put away&#8217; from others. Christians of the 16th century were certain that people with disabilities were possessed by evil spirits. Darwinism thought of the 19th century, although considered &#8216;scientific,&#8217; was certainly of no help. Impairments and imperfections went against the idea of &#8216;survival of the fittest.&#8217;<\/p>\n<p>An extensive <a href=\"https:\/\/pmc.ncbi.nlm.nih.gov\/articles\/PMC5007563\/\">2016 study on stigma and mental health disorders<\/a>\u00a0revealed a dire finding: &#8220;<em>There is no country, society or culture where people with mental illness have the same societal value as people without a mental illness.&#8221;\u00a0<\/em>\u00a0A disappointing discovery, to be sure.<\/p>\n<p>After experiencing repeated instances of bias, the developmental disability a person may have, compounded by mental health diagnoses and\/or stressors, becomes internalized. Individuals eventually begin to<a href=\"https:\/\/www.psychiatry.org\/patients-families\/stigma-and-discrimination\"> believe that they are:<\/a><\/p>\n<ul>\n<li>Incompetent,<\/li>\n<li>To blame for their problems,<\/li>\n<li>Unworthy.<\/li>\n<\/ul>\n<p>Eventually, low self-esteem and low self-confidence take over the person&#8217;s mindset. They begin to see their challenges as not something to overcome, but significant limitations that are insurmountable. They come to believe that it&#8217;s useless to even try to achieve their goals. This results in progressively decreased functioning and dependence on others.<\/p>\n<h2>Our Tasks as Human Services Providers and Community Members<\/h2>\n<p><img decoding=\"async\" class=\"aligncenter size-large wp-image-4786 lazyload\" data-src=\"https:\/\/alsoweb.org\/wp-content\/uploads\/2024\/06\/ALSO_030123-final-17-1-1024x683.jpg\" alt=\"A direct support professional from ALSO teaches two developmentally disabled clients in wheelchairs how to cook for themselves. \" width=\"1024\" height=\"683\" data-srcset=\"https:\/\/alsoweb.org\/wp-content\/uploads\/2024\/06\/ALSO_030123-final-17-1-1024x683.jpg 1024w, https:\/\/alsoweb.org\/wp-content\/uploads\/2024\/06\/ALSO_030123-final-17-1-300x200.jpg 300w, https:\/\/alsoweb.org\/wp-content\/uploads\/2024\/06\/ALSO_030123-final-17-1-768x512.jpg 768w, https:\/\/alsoweb.org\/wp-content\/uploads\/2024\/06\/ALSO_030123-final-17-1-1536x1024.jpg 1536w, https:\/\/alsoweb.org\/wp-content\/uploads\/2024\/06\/ALSO_030123-final-17-1-2048x1365.jpg 2048w, https:\/\/alsoweb.org\/wp-content\/uploads\/2024\/06\/ALSO_030123-final-17-1-500x333.jpg 500w, https:\/\/alsoweb.org\/wp-content\/uploads\/2024\/06\/ALSO_030123-final-17-1-575x383.jpg 575w\" data-sizes=\"(max-width: 1024px) 100vw, 1024px\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" style=\"--smush-placeholder-width: 1024px; --smush-placeholder-aspect-ratio: 1024\/683;\" \/><\/p>\n<p>So how do we address the negative effects of stigmatization? How can we turn the tides toward an open acknowledgment of the inherent value of full inclusion of people with all disabilities&#8230;including those with mental health issues?<\/p>\n<p>For over 25 years, the entire staff at ALSO has been firmly committed to the <a href=\"https:\/\/alsoweb.org\/disability-support-service-provider\/\">vision<\/a>\u00a0of a future in which all persons with disabilities are fully included, participating members of society. We have been working for equitable access in schools, communities, and workplaces. Let&#8217;s talk further about the barriers to proper mental health care and disability services that have been created. But more importantly, let&#8217;s focus on solutions to these challenges.<\/p>\n<h2>Barriers to Mental Health and Disability Support<\/h2>\n<p>There are a number of <a href=\"https:\/\/www.h2hhc.com\/blog\/understanding-the-link-between-intellectual-disabilities-and-mental-health#:~:text=Research%20shows%20a%20robust%20link%20between%20mental%20health,other%20psychiatric%20disorders%20compared%20to%20the%20general%20population.\">systemic issues<\/a> that interfere with appropriate mental healthcare of people with I\/DD and other disabilities.<\/p>\n<ul>\n<li><strong>Fragmented Support Systems:\u00a0<\/strong>Multiple health services across different sectors and provider organizations are often subject to poor care coordination. This results in gaps in diagnostic and treatment interventions. The opportunity for comprehensive mental health services can be particularly difficult.<\/li>\n<li><strong>Lack of Provider Training: <\/strong>Many healthcare providers lack proper training in diagnosing mental health conditions and understanding the unique needs of people with other disabilities. This results in a high level of attribution of conditions to the disability, leaving important mental health problems unchecked.<\/li>\n<li><strong>Communication Barriers:\u00a0<\/strong>This problem may apply to those with severe I\/DD. It&#8217;s difficult for the provider to understand what the individual is trying to communicate. However, we must remember that just because someone has trouble articulating sentences, it shouldn&#8217;t be assumed that they have cognitive deficits.<\/li>\n<li><strong>Financial and Insurance Obstacles:\u00a0<\/strong>Numerous socioeconomic factors prevent individuals from getting good-quality care. Income disparities of people with disabilities compared to the rest of the population often encourage inequitable care.<\/li>\n<\/ul>\n<p>We must remember that these systemic issues add up, not just for people with disabilities and mental health challenges, but also for the public as a whole. When these issues are left unchecked, people easily end up in the emergency department. The costs to the public for these crises that could have been prevented far outweigh what could have been done at the local healthcare center.<\/p>\n<h2>Breaking the Stigma: Advocacy and Action<\/h2>\n<p>No matter who you are, you can be part of the solution in breaking the stigma and successfully addressing the mental health needs of people with disabilities.<\/p>\n<h3>1. Ask for High Quality Case Management<\/h3>\n<p>As a service provider, remember that you are a member of a multidisciplinary team that is responsible for the care of your patients. You can advocate for a qualified case manager or service coordinator to synthesize and help to prioritize the needs of the people that you serve.<\/p>\n<h3>2. Advocate for Primary Care<\/h3>\n<p>On any care team, it&#8217;s always helpful for one health care provider to take the lead. Primary care providers may fulfill this role as they are trained in addressing mental as well as physical health problems. In addition, they would be responsible for writing referrals if the individual with the disability needed counseling services or additional behavioral support.<\/p>\n<h3>3. Empower Self-Advocacy<\/h3>\n<p>Excellent support of individuals with disabilities must include facilitation of <a href=\"https:\/\/www.connectability.org.au\/the-intersection-of-disability-and-mental-health\/\">self-advocacy skills.<\/a> We need to help them to understand their disability rights by providing resources, education, and, of course, encouragement. This is very empowering and contributes to well-being.<\/p>\n<h3>4. Ask &#8211; and Listen<\/h3>\n<p>Finally, we are reminded to be a <a href=\"https:\/\/thinkequitable.com\/intersection-of-disability-and-mental-health\/\">good listening ear.<\/a>\u00a0 If someone wants to talk, just be available to listen without making any judgments or assuming what they might need. We all know how much better we feel when we can just vent and let it all out!<\/p>\n<h2><strong>ALSO <\/strong><strong>Supports Mental Health Needs of the Disability Community<\/strong><\/h2>\n<div class=\"wp-block-image\"><img decoding=\"async\" class=\"wpa-warning wpa-image-missing-alt aligncenter wp-image-3492 size-large lazyload\" data-src=\"https:\/\/alsoweb.org\/wp-content\/uploads\/2022\/08\/bw-29-1024x683.jpg\" alt=\"A direct support professional makes a heart sign with her female developmentally disabled client while both smile at the camera. \" width=\"1024\" height=\"683\" data-warning=\"Missing alt text\" data-srcset=\"https:\/\/alsoweb.org\/wp-content\/uploads\/2022\/08\/bw-29-1024x683.jpg 1024w, https:\/\/alsoweb.org\/wp-content\/uploads\/2022\/08\/bw-29-300x200.jpg 300w, https:\/\/alsoweb.org\/wp-content\/uploads\/2022\/08\/bw-29-768x512.jpg 768w, https:\/\/alsoweb.org\/wp-content\/uploads\/2022\/08\/bw-29-1536x1024.jpg 1536w, https:\/\/alsoweb.org\/wp-content\/uploads\/2022\/08\/bw-29-2048x1365.jpg 2048w\" data-sizes=\"(max-width: 1024px) 100vw, 1024px\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" style=\"--smush-placeholder-width: 1024px; --smush-placeholder-aspect-ratio: 1024\/683;\" \/><\/div>\n<p>&nbsp;<\/p>\n<p>Organizations like ALSO have an important role to play in breaking the stigma of mental health and disability. We are strong allies in all advocacy and education efforts related to mental health and well-being needs.\u00a0 We have witnessed how, when our support services are paired with high-quality mental health care, those we support benefit in their intellectual functioning, self-esteem, and even physical health. It&#8217;s all connected!<\/p>\n<p><a href=\"https:\/\/alsoweb.org\/nonprofit-blog\/a-guide-for-achieving-full-community-inclusion\/\">Our community-based services<\/a> support mental health practitioners and their goals by following up and providing opportunities for the people we support in practicing adaptive behaviors that improve independence, self-worth, and daily function in everyday life.<\/p>\n<p>Together, we aim to break the stigma. We promise.<\/p>\n<p><a href=\"https:\/\/alsoweb.org\/disability-support-service-provider\/\">Learn more about ALSO<\/a><\/p>\n<p>&nbsp;<\/p>\n<h2>Sources<\/h2>\n<ol>\n<li>Harte, B.\u00a0How intersectionality impacts people with a disability \u2013 and what we can do about it. <em>Missing Perspectives.<\/em>\u00a0January 10, 2025. https:\/\/missingperspectives.com\/posts\/intersectionality-disability\/ Accessed May 13, 2025.<\/li>\n<li>Heart to Heart. Understanding the link between intellectual disabilities and mental health. May 2, 2025. https:\/\/www.h2hhc.com\/blog\/understanding-the-link-between-intellectual-disabilities-and-mental-health#:~:text=Research%20shows%20a%20robust%20link%20between%20mental%20health,other%20psychiatric%20disorders%20compared%20to%20the%20general%20population. Accessed May 13, 2025.<\/li>\n<li>National Center for Disability, Equity, and Intersectionality. Exploring the intersection of disability and mental health. May 31, 2024. https:\/\/thinkequitable.com\/intersection-of-disability-and-mental-health\/.\u00a0 Accessed May 12, 2025.<\/li>\n<li>Heart to Heart. Understanding the link between intellectual disabilities and mental health. May 2, 2025. https:\/\/www.h2hhc.com\/blog\/understanding-the-link-between-intellectual-disabilities-and-mental-health#:~:text=Research%20shows%20a%20robust%20link%20between%20mental%20health,other%20psychiatric%20disorders%20compared%20to%20the%20general%20population. Accessed May 12, 2025.<\/li>\n<li>Munyi, CW., Past and present perceptions toward disability: a\u00a0historical perspective. (2012)\u00a0<em>Disability Studies Quarterly, 32<\/em>(2). https:\/\/dsq-sds.org\/index.php\/dsq\/article\/view\/3197\/3068.<\/li>\n<li>R\u00f6ssler W. The stigma of mental disorders: A millennia-long history of social exclusion and prejudices. EMBO Rep. 2016 Sep;17(9):1250-3. doi: 10.15252\/embr.201643041. Epub 2016 Jul 28. PMID: 27470237; PMCID: PMC5007563. [quote from page 1251]. Accessed May 13, 2025.<\/li>\n<li>American Psychiatric Association. Stigma, Prejudice and Discrimination Against People with Mental Illness.\u00a0<a href=\"https:\/\/www.psychiatry.org\/patients-families\/stigma-and-discrimination\">https:\/\/www.psychiatry.org\/patients-families\/stigma-and-discrimination<\/a>\u00a0Accessed May 13, 2025.<\/li>\n<li>Heart to Heart. Understanding the link between intellectual disabilities and mental health. May 2, 2025. https:\/\/www.h2hhc.com\/blog\/understanding-the-link-between-intellectual-disabilities-and-mental-health#:~:text=Research%20shows%20a%20robust%20link%20between%20mental%20health,other%20psychiatric%20disorders%20compared%20to%20the%20general%20population. Accessed May 13, 2025.<\/li>\n<li>Connectability.org. Holistic approaches to well-being. https:\/\/www.connectability.org.au\/the-intersection-of-disability-and-mental-health\/ Accessed May 13, 2025.<\/li>\n<li>Wong, A. Exploring the intersection of disability and mental health. <em>National Center for Disability, Equity, and Intersectionality.<\/em> May 31, 2024. https:\/\/thinkequitable.com\/intersection-of-disability-and-mental-health\/.\u00a0 Accessed May 12, 2025.<\/li>\n<\/ol>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Breaking Stigma: Addressing Mental Health Needs in Disability Communities Imagine that you&#8217;re living with a disability. Maybe you have cerebral palsy, or possibly you recently had a stroke that required you to use a cane or a walker. Well, you just happen to be a<\/p>\n","protected":false},"author":6,"featured_media":4206,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[30,34,52],"tags":[],"class_list":["post-5252","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-community-inclusion","category-mental-health"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.3.1 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Addressing Mental Health Needs in Disability Communities<\/title>\n<meta name=\"description\" content=\"Explore the intersection of disability and mental health, the impact of stigma, and how inclusive support systems can empower individuals and communities.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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